Time is Muscle
Aaron Langan is a 9-year-old boy from Laghey, Co. Donegal living with Duchenne Muscular Dystrophy (DMD), a rare and terminal genetic condition that causes progressive muscle loss throughout the body.
The drug Givinostat has already been approved by the European Medicines Agency (EMA), but children in Ireland are still waiting for access while reviews and negotiations continue.
Every delay means more irreversible muscle loss for children like Aaron.
Families are not asking for a cure. They are asking for a chance to slow the progression of this cruel disease and improve quality of life.
Please take 30 seconds to send a respectful email to the Minister for Health asking for urgent approval and funding of Givinostat for children living with DMD in Ireland.